Patient Voices: Spinal Cord Injury
Life after a spinal cord injury is filled with the challenge of accepting your injury, coping with your limitations and adjusting to an entirely new way of seeing the world. Here, six men and women talk about their lives after a spinal cord injury.
Spinal Cord Injury Resources from FacingDisability.com
FacingDisability.com selected more than 300 of the best spinal cord injury resources on the web. It's designed to help you find what you need quickly; the descriptions are written in plain English; every listing tells you "Where to Start."
Spinal Cord Central
The NSCIA and United Spinal Association have combined forces to make an easily accessible online resource center about living with spinal cord injury or disease. Spinal Cord Central keeps an extensive index of resources according to topic in what it calls the Knowledge Books. Also, osn this website anyone can pose a question, which is then answered directly by a team of spinal cord injury specialists. Your own Personal Information Center is created within the site when you submit a request. Here you can view all your questions and answers as well as the interactions between the specialists working on your query, which provide unique and useful insights.
The National Spinal Cord Injury Association
Provides active-lifestyle information, peer support and advocacy that empowers people living with spinal cord injuries and disorders (SCI/D) to achieve their highest potential.
United Spinal Association
The United Spinal Association was created to improve the quality of life of individuals with spinal cord injuries. Within this website, members connect, find outlets for assistance, and learn about events in their area. The site also maintains updated news feeds on current events, sports, veterans and kids in the spinal cord Injury community.
SCI Info Sheets
The Iniversity of Alabama Spinal Cord Model System offers a series of Information Sheets on selected topics related to SCI. These fact sheets are written for consumers.
Spinal Cord Injury Zone
The Spinal Cord Injury Zone has information and resources for people living with Spinal Cord Injury (SCI). The Spinal Cord Injury Zone includes Spinal Cord Injury News updated almost daily with the latest spinal cord injury news articles. At The SCI Zone Links Page you can find links to anything Spinal Cord Injury related.
CareCure Community
CareCure Community has over 70 forums with informed comments on all issues of paralysis.
ACTIVE LIFESTYLE AND SPORTS
Vermont Adaptive Ski and Sports
A place where youth and adults with disabilities gain a measure of self confidence and independence by participating in adaptive sports programs and activities.
New England Handicapped Sports Association
NEHSA is a volunteer, non-profit organization operated by and for individuals with disabilities. Our goal is to integrate individuals with disabilities into society through social and recreational activities. Regardless of your ability, NEHSA has a program for you.
New England Disabled Sports
Programs allow individuals with disabilities to enjoy a boundary-free environment, enjoy outdoor recreation with friends and family, as well as provide access to equipment and instruction that might otherwise be unavailable.
Northeast Passage
Year-round Adaptive Recreation Programs, New Hampshire
Crotched Mountain Accessible Recreation & Sports
Crotched Mountain Accessible Recreation and Sports (CMARS) brings people living with disabilities together with family and friends in a range of accessible recreational and sport activities.
Maine Adaptive Sports & Recreation
Offers year-round adaptive recreational programs that teach adaptive sports activities to people with physical disabilities, ages four and up.
Bretton Woods Adaptive Sports & Recreation
Bretton Woods Adaptive, Inc., is a non-profit 501(c)3 organization whose mission is to provide instruction to enable persons with physical or developmental challenges to participate in recreational sports. Bretton Woods Adaptive strives to foster independence and to maximize abilities so that each participant reaches his/her potential as an athlete in their chosen sport.
AbilityPLUS Adaptive Sports
AbilityPLUS™ Adaptive Sports has been enriching lives for more than 15 years. With program venues at Mount Snow, Vermont and Mount Washington Valley, New Hampshire, they offer year 'round adaptive sports programs for people with all manner of disability.
Disabled Sports USA
Offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events.
Challenged Athletes Foundation
It is the mission of the Challenged Athletes Foundation® (CAF) to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics. Provides grants to fund adaptive equipment and clinics to build confidence.
Life Rolls On
Life Rolls On, a subsidiary of the Christopher & Dana Reeve Foundation, is dedicated to improving the quality of life for young people affected by spinal cord injury and utilizes action sports as a platform to inspire infinite possibilities despite paralysis.
Resource Directory at Northeast Passage
Resources are listed by category alphabetically. One of the best directories for finding anything "adaptive" in the northeast and beyond!
International Paralympic Committee
The International Paralympic Committee (IPC) is the global governing body of the Paralympic Movement. The IPC organizes the Summer and Winter Paralympic Games, and serves as the International Federation for nine sports, for which it supervises and co-ordinates the World Championships and other competitions. The IPC is committed to enabling Paralympic athletes to achieve sporting excellence and to developing sport opportunities for all persons with a disability from the beginner to elite level. In addition, the IPC aims to promote the Paralympic values, which include courage, determination, inspiration and equality.
Adaptive Skiing Videos
Mono ski and bi-ski videos including the first ever backflip on a sit ski and Mono Ski X competition
Sports 'N Spokes
A magazine for wheelchair and sports recreation
Active Lifestyle Links
These websites feature an array of athletic opportunities available to individuals with spinal cord injuries. Activities include such sports as quad rugby and wheelchair tennis as well as recreational events and camps for families.
REHAB AND FINANCIAL ASSISTANCE
Shepherd Center
Shepherd Center is one of the top rehabilitation hospitals in the nation, specializing in medical treatment, research and rehabilitation for people with spinal cord injury or brain injury.
Project Walk
Project Walk provides intense activity-based recovery programs, education and ecouragement.
HelpHOPELive
Helps families address financial hardships arising from uninsured medical expenses related to transplantation (solid organ, bone marrow, stem cell or tissue) and catastrophic injury (spinal cord or traumatic brain.) They provide the consultation needed to raise funds to bridge the gap between what health insurance will pay and what is actually needed to heal, live and thrive.
The Kelly Brush Foundation
The Kelly Brush Foundation Individual Grant Program awards grants to individuals with paralysis due to a spinal cord injury (SCI). The purpose of the individual grant program is to increase participation in adaptive sports and recreation activities and improve the quality of life for individuals living with SCI.
Travis Roy Foundation
The Travis Roy Foundation provides grants to victims of spinal cord paralysis based on financial need and also funds research. In addition to grant information, the web site contains information about Foundation events, fund-raisers and programs, as well as SCI information and resources.
The Cindy Donald Dreams of Recovery Foundation
Dreams of Recovery grants financial support for individuals to participate in approved therapy programs which are not covered by insurance, grants individuals equipment to improve daily life, and grants approved institutions necessary funding to conduct scientific research to find a cure for paralysis.
Walking With Anthony
In addition to educating the public to raise awareness of the impact of spinal cord injury, Walking With Anthony will raise funds to expand Project Walk and other rehab centers, support research relating to spinal cord injury rehab and, most importantly, provide financial assistance to spinal cord injury victims that do not have the funds to pay for this expensive recovery so that many may have the opportunity to get stronger, live healthier, and learn to walk again.
Darrell Gwynn Foundation
Exists to prevent, provide for and ultimately cure spinal cord injuries and other debilitating illnesses. To expedite specific cures, the Foundation assists in the funding of targeted research. Also helps improve the quality of life for those already afflicted with injury or illness, by providing necessary equipment or special services.
The Bryon Riesch Paralysis Foundation
The Bryon Riesch Paralysis Foundation's (BRPF) goal is to find a cure for paralysis through funding the latest in medical research and to provide
assistance to those that suffer from neurological disorders.
Rick Hansen Institute
Accelerating the discovery of a cure for spinal cord injury and improving quality of life, through fundraising and facilitating research.
MORE
Miami Project to Cure Paralysis
University of Miami School of Medicine, is the world's largest, most comprehensive research center dedicated to finding more effective treatments and, ultimately, a cure for paralysis that results from spinal cord injury.
Facing Disability
FacingDisability.com brings you the voices of experience. They have more than 1,000 videos.
NH National Spinal Cord Injury Association
A New Hampshire nonprofit organization whose mission is to promote life with independence for people with disabilities and those experiencing the natural process of aging through advocacy, information, education and support.
Paralyzed Veterans of America
For more than 65 years, Paralyzed Veterans of America has been on a mission to change lives and build brighter futures for our seriously injured heroes—to empower these brave men and women with what they need to achieve the things they fought for: freedom and independence.
SCI Guide
The SCI Guide brings together the best websites on SCI chosen by you for you, and it’s easy to use.
getATstuff
The goal of getATstuff is to help get Assistive Technology devices that are no longer being used into the hands of people who need and can benefit from them.
QuadTools
QuadTools makes The Cripper, a reacher / grabber designed for quadriplegics who have wrist function that allows them to bend their hand back at the wrist. It can also be used by any handicapped or disabled person who needs assistance reaching or gripping objects. They also make the Quadknife which is very handy in the kitchen.
Determined 2 Heal
Provides helpful information for the newly spinal cord injured.
Spinal Cord Injury Information Network
Links to national organizations, government agencies, commercial products, and educational resources related to spinal cord injury.
Spinal Cord Injuries
Information on treatment, rehab, research, organizations and statistics.
Spinal Cord Injury Network
A comprehensive spinal cord injury website.
Spinal Cord Injury Information Page
Resources for those with a spinal cord injury or other disabling injuries and diseases of the spine. Provides quadriplegic, paraplegic and caregiver information.
Apparelyzed ~ Spinal Cord Injury Peer Support
Provides peer support for those affected by spinal cord injuries. When someone suffers a spinal cord injury, there will be a wide variety of issues to cope with. A discussion forum is the main focus of the website.
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